I was just going to watch the Superbowl game last Sunday at my neighborhood temple. It was also my first social event since I had a little Parry Romberg Syndrome surgery to maintain the balance of both sides of my face. I had some fat injections on the right side of my face, and my lip was lowered a bit. This work mainly cosmetic was performed by John W. Seibert late Dec 2009.
Some of my friends know what illness I have and when they saw me just commented that I looked good and asked how everything was nothing personal. Most people in my temple do not even know a thing about my PRS.
From years of dealing with social idiots I know there will always be one person who says the wrong thing. In this case, a lawyer friend who always lets say "admires me" and always tells my husband how attractive I am, came up to me and commented how good my face looked and to my surprise he had to add, I thought something was a little "off" with your lips. He went on to ask me if I was going to have more surgery.... I cut him off there, and told him it was none of his god-damn business and added "enjoy the rest of the game". I turned around and smiled.
Nobody treats me this way and I don't have to listen or defend myself. I hold my head high and smile. Some children never grow up.
my personal acount about living with a "rare disease" called Parry Romberg Syndrome a autoimmune disease that affects about 700 people in the USA. I hope my blog will shed some light and offer hope to those like myself. There are over 7000 known rare diseases. My blog is dedicated to those whose lives have been shattered by any rare disease. There is no cure for Parry Romberg Syndrome.
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Friday, February 12, 2010
I still get nasty Parry Romberg Syndrome comments.
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