You Are Already BeautifulParry Romberg Syndrome and Me My story by Cheryl Rick Klein
It has beem 10 years since you left
Dedicated with love to MANNY RICK my dad who died May 23, 2000
My father was the first to notice that something was very wrong with my face when a small cut by my chin didn't heal. He wasted no time and took me to every medical expert to find out was was wrong
He held my hand and told me that I was still beautiful and told me to remain strong. He told me he would never give up to make me well again.
He showed me what true beauty is. You won't find it in any mirror.
My dad lost both his legs to complications having diabetes.
I told him what he told me so many years ago.
Be strong, you are a beautiful person
And he was.........
It was the day of my little sister's wedding. I went over to my parent's house
to get ready for the big event.
Suddenly, my mother, and my two sisters were gathering their gowns and were heading to the door. " Where are you going ? I asked."
We have to get to the temple early we are having our makeup done professionally. They didn't make a appointment for me.
My face said it all. My dad who was watching the situation remarked "I told you it wasn't right to not include Cheryl."
I just stood speechless as they pushed past me and headed out the door.
I ran upstairs to my old room and cried. I didn't understand why I was not included. I lost half my face to Parry romberg Syndrome and it took years of cosmetic procedures to erase the damage on the outside.
Could my own family be so shallow and actually be jealous I became too pretty???
My father called me to come downstairs.
He had tears in his eyes when he saw me. He opened his arms and hugged me tight. We cried together.
Then he said the most beautiful words to me I will never forget.
" You don't need a make-up artist you are so beautiful just the way you are."
I loved my dad more than anyone in the world.
Diabetes is also a auto-immune illness that can be devastating.
Parry Romberg Syndrome became a official rare disease in 2001.
Sadly my dad never knew I was finally diagnosed, he died just one year before.
my personal acount about living with a "rare disease" called Parry Romberg Syndrome a autoimmune disease that affects about 700 people in the USA. I hope my blog will shed some light and offer hope to those like myself. There are over 7000 known rare diseases. My blog is dedicated to those whose lives have been shattered by any rare disease. There is no cure for Parry Romberg Syndrome.
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Showing posts with label Amputation. Show all posts
Showing posts with label Amputation. Show all posts
Monday, May 24, 2010
Daddy I Wish........
great dads, daddy, daughter love
Amputation,
Chicken soup for the father's soul submit,
diabetes,
Eurodis,
jealousy,
love
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