my personal acount about living with a "rare disease" called Parry Romberg Syndrome a autoimmune disease that affects about 700 people in the USA.
I hope my blog will shed some light and offer hope to those like myself.
There are over 7000 known rare diseases. My blog is dedicated to those whose lives have been shattered by any rare disease.
There is no cure for Parry Romberg Syndrome.
