You are already beautiful by Cheryl Rick Klein

my personal acount about living with a "rare disease" called Parry Romberg Syndrome a autoimmune disease that affects about 700 people in the USA. I hope my blog will shed some light and offer hope to those like myself. There are over 7000 known rare diseases. My blog is dedicated to those whose lives have been shattered by any rare disease. There is no cure for Parry Romberg Syndrome.

Showing posts with label publicity sick children.. Show all posts
Showing posts with label publicity sick children.. Show all posts
Wednesday, March 10, 2010

Sam Starts Up

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My baby,ok she is turning on March 13, and she is having a party. Samantha Jill Klein was born on March 13, 2001. She is named Samantha af...
Saturday, January 23, 2010

Should Parents Post Photos of Their Children with Parry Romberg Syndrome?

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I often wonder if Parents think about the effects of posting images of their own child suffering from Parry Romberg's Syndrome on a cove...
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